Wilms Tumor Resources

Publications

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Briefing (Series 1.3a)

Pediatric Renal Cancer/ (Disease & Support)

This briefing is designed to provide a clear, accessible introduction to both the mission of the Wilms Cancer Foundation and the medical context it serves. It offers a concise overview of Wilms tumor - a rare form of childhood kidney cancer—outlining its nature, impact on families, and the importance of early detection and coordinated care.

It also introduces the Wilms Cancer Foundation’s role in advancing awareness, supporting affected children and families, and fostering global collaboration in research and treatment. Together, these elements establish the foundation’s purpose within the broader effort to improve outcomes and quality of life for children facing this disease.

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 2.1b)

Disease, Symptoms, Treatment and Support.

This document is designed to provide a clear, accessible introduction and overview of Wilms tumor—a rare form of childhood kidney cancer - outlining its nature, impact on families, and the importance of early detection and coordinated care.

Key Highlights include:

a) Disease:

b) Symptoms;

c) Treatment;

d) Support;

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 2.2a)

Early Diagnosis & Long-term Outlook

(A Plain Language Guide for Parents and Caregivers)

This briefing provides a plain-language overview of early diagnosis and long-term outlooks for Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.

Key Highlights include:

a) One Page Summary for Caregivers:

b) Screening;

c) Diagnosis (Step by Step);

d) How Wilms Tumor is Detected;

e) Important Safety Point;

f) What to Ask your Child’s Doctor.

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 2.2b)

A Plain Language Guide for Parents and Caregivers

This briefing provides a plain-language overview of Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.

Key Highlights include:

a) Summary for Caregivers:

b) Screening;

c) What to ask your Child’s Doctor;

d) Diagnosis (Step by Step);

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 5.7a)

Pediatric Renal Cancer/ (Disease, Symptoms, Treatment and Support)

This briefing provides an accessible overview of pediatric renal cancers, including Wilms tumor, with a focus on both medical understanding and family support. It outlines the core elements of the disease - symptoms, diagnosis, and treatment - while also addressing the broader challenges families may face during and after care. Designed to inform and guide, the document highlights available support pathways and offers practical insight to help caregivers navigate the medical and emotional aspects of a child’s cancer journey.

Key Highlights include:

a) Disease;

b) Symptoms;

c) Treatment;

d) Challenges Ahead;

e) Support.

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 6.1a)

Surveillance & Follow-up Guidelines

Standard & High-Risk Pediatric Renal Tumor (Wilms)

This briefing provides a clear overview of post-treatment surveillance and follow-up care for pediatric renal cancer, specifically Wilms tumor. It outlines the purpose and objectives of ongoing monitoring, explains key definitions, and distinguishes between standard - and high-risk follow-up protocols. Designed to support caregivers and stakeholders, the document offers practical guidance on how long-term care is structured to detect recurrence early and ensure the best possible outcomes for children.

Key Highlights include:

a) Objectives of Surveillance;

b) Definitions.

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 6.2a)

Wilms Tumor Relapse

Factors, Treatment Options & Long-term Care

This briefing provides a focused overview of relapse in Wilms tumor, explaining why and when relapse may occur, as well as the key factors that influence risk. It outlines current treatment options and the structure of long-term follow-up care, offering caregivers a clear understanding of how relapse is managed and monitored. Designed to be both informative and practical, the document supports families in navigating the complexities of recurrence and ongoing care.

Key Highlights include:

a) Why Relapse Occurs;

b) When Relapse Occurs;

c) Factors Affecting Relapse Risk;

d) Treatment Options;

e) Long-term follow-up Care.

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).